I have to confess…..I am happy we got a 2 week reprieve from chemo…..Paul looks and feels GREAT and I just want to hang onto that a little longer…..
He has really come a long way in changing lifestyle habits. You know, it’s kind of hard teaching an old dog new tricks…..but in typical Paul fashion when he “buys in” he is in 100%…..and his body has made it clear these are nonnegotiable! So he takes a little walk in the afternoon, eats the right foods and eats several small meals and/or snacks a day, rests when his is tired…..
I mean, if we are being honest here, and I always am on my blog, I have to confess I wasn’t sure how this was going to go. I mean, for those that don’t know my husband, he can be a little stubborn sometimes……If there is something you DON’T want Paul to do, tell him he HAS to do it……’cause he will dig his heels in and quietly say to himself “she can’t tell me what to do” and just won’t do it…..there will be no spectacle….there will be no big blow up…no stomping around puffing up his chest or anything……just a quiet refusal to be TOLD what to do…..*sigh* ……
But truth be told he knew even HE could not deny the requests his body and spirit were requiring so thank God he bought into all this pretty early on and his health these last couple of weeks has been AMAZING! He looks great, feels great and is even practicing horns again and not wearing out like he used to…..and I think we both need to experience that for just a little while longer…..
I am reminded of my days in competitive swimming when you are on the starting blocks and one swimmer inevitably dives in before the buzzer resulting in a “false start”. That’s kind of what happened at CTRC today.
Paul had shown interest in participating in the clinical trials for a Pancreatic Cancer Vaccine and that is what delayed todays chemo appointment. Apparently, we were supposed to have some blood work done and one injection of the vaccine BEFORE starting chemo. So we got him to apply to the study officially, signed all the consent forms and did the blood work to make sure he qualifies. They will call early next week to see if he qualifies and he will either get chosen to receive the vaccine or be a test subject who will NOT receive the vaccine. If he is selected to receive the vaccine we will drive up to S.A. next week and get the shot then go the following week for the first round of chemo. So miscommunication resulted in a two-week delay….but we are good with that. If there is ANY shot he can get this experimental vaccine we want in on it.
Other than that Paul also got his last small tube removed. He didn’t feel a thing……I thought I was going to BARF! I am sorry, but I can’t get used to watching a doctor pull a 2 foot long tube that looks like a huge worm out of my hubby’s insides! UGH! I am NOT cut out for the medical field OBVIOUSLY!
Paul also got a prescription for some enzymes to help digest food better….especially if he indulges in something with more fat or cholesterol than usual. I really thought they would have given him those by now, as recommended by our friend who is 5 years into his whipple/cancer fight…..but they wouldn’t give them up until today. Paul hasn’t had a diet snafoo in a while….he has gotten pretty good at regulating his food consumption along with appropriate rest and exercise….but this will be another tool in the arsenal to make sure he continues doing well.
So the trip wasn’t a total loss although the chemo was delayed……but he has a couple more weeks to feel good and play some music and have some fun……..