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Pre-Shop the Auction Items for the Benefit on Sunday

Here is a list that was sent to me this morning.  This shows all of the auction items that have been received so far.  I know that there are still a few more out there, so if we are missing an item, let us know as soon as possible!!

Here’s the list for your shopping pleasure!  The items in bold type will actually be auctioned off Live.  Everything else is by silent auction.

Thank you everyone for your generosity.  Have fun shopping!!!!

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ITEM

 

1 Handcrafted Ladies’Fine Silver (.999) Link Bracelet
2 Handcrafted pure Copper Bracelet in 4-in-1 chainmaille design Bracelet  
3 Necklace, Bracelet and Earring Set of Freshwater Pearls and Rose Quartz  
4 All Natural Beeswax Candle by Yankee Candle “Take the Cake” aroma  
5 1 Custom-made Adult Hula Hoop with either personal instruction OR a Hoop Party for your friends. Wendy will bring hoops for your friends  
 

6

1-Day Shallow Water Adventure Fishing Charter w/

Capt. Noel Guerrero Hunting for Redfish with artificial lures

 
7 Round of Golf for 4 w/Cart Tues-Sun after 1pm (A)  
8 Round of Golf for 4 w/Cart Tues-Sun after 1pm (B)  
9 $25 Gift Certificate for a Cheesecake from Jama’s Lunch Box Cafe  
10 Handmade Scrap Quilt in “Hugs & Kisses” Pattern. Animal and floral print with black & whites. Backing is black on white starburst, and binding is black & white stripe. 54” x 57”—a perfect snuggle size!

 

 
11 Framed photograph (15 ½” x 21 ½”) of White Pelicans by Cissy Beasley of Coast and Cactus Photography. Taken early morning on Oct. 24, 2011 at Port Aransas Birding Center. (www.coastandcactus.com)  
12 One Night Stay at Angel Rose Bed & Breakfast 1881 Victorian House

902 E Cornwall Rockport, TX

 
13 Two Night Stay at The Hampton Inn Portland 1705 N. Hwy 181 Portland, TX with a Round of Golf for 2 at North Short Country Club  
14 One Night Stay in Spa Suite at Best Western Plus North Shore Inn in Portland. Includes Champagne and Strawberries Plus a Round of Golf for 2 at North Shore Country Club, inclulding cart  
15 White Handblown Glass Bowl from Wimberley Glassworks 2011  
16 Galle French Glass Vale (reproduction) with Backstory  
17 Necklace of Multi-colored Magnesite with Amethyst and Quartz accents and 4 pairs of coordinated earrings  
18 Antique Glass Cake Stand with Etched Lid  
19 Ship’s Clock and Barometer  
20 14K Gold Hoop Earrings  
21 “Wildlife in Focus IV” Hardcover Book 172 pages. The Coastal Bend Wildlife Photo Contest Conservation Edition  
22 “Nascar Chronicle” Hardcover Book 512 pages by Greg Fielden  
23 “Creature” Hardcover Wildlife Photography Book with no disctracting backgrounds by Andrew Zuckerman  
24 Telescoping Gutter Cleaning Wand by Orbit  
25 Car Emergency Kit with Reflectors, Tools, Jumper Cables, Cloth and Instructions  
26 Wood Clock, battery operated  
27 Confederate General Resin Statue  
28 Framed Print signed by Charles Popo Crosby (Parrot)  
29 Framed Print signed by Charles Popo Crosby (Pair of Parrots)  
30 Grandparents’ Bucket of Books  
31 $50 Gift Certificate at Boiling Pot Restaurant

Fulton, TX (001)

 
32 $50 Gift Certificate at Boiling Pot Restaurant

Fulton, TX (002)

 
33 $50 Gift Certificate at Boiling Pot Restaurant

Fulton, TX (021)

 
34 Framed Sailboat Watercolor Print 434/1000 22 ½” x 26 ½”  
35 9” x 13”Cheesecake w/Naming Rights for 1 year with signage in restaurant  
36 Yard Décor (Windsock, Windwheel, Garden Flag)  
37 Mini Pecan Pies  
38 Art Print “Rooster”  
39

 

Train Cake (Baked fresh Saturday)  
40 128 pc Crescent Mechanic’s Tool Kit  
41 Oil painting from Germany (1)Beautiful oil painting by Thomuz, a Dutch painter. This painting shows a typical German farmhouse in Bavaria with living quarters for the animals below and space for the family above. Notice the flower boxes and geraniums on the balcony, another typical German tradition in the spring and summer months. Behind the farmhouse is a tall church. Painting was brought back from Germany in 1985.  
42 Oil painting from Germany (2)Sailboat on European lake, probably in Bavaria, by the Dutch painter Thomuz. Notice the mountains in the background, probably low Alps. Painting was brought back from Germany 25 years ago.  
43 (1)

Beautiful Grimm Bros “Mother Holle” Fairy Tale Art poster with title written in German, English, French, and Swedish.

 
44 (2) Beautiful Grimm Bros. “Little Red Cap” Fairy Tale Art Poster with the title written in German, English, French and Swedish.  
45 (3) Beautiful Grimm Bros “Frog King” Fairy Tale Art Poster with title written in German, English, French and Swedish.  
46 (3) Beautiful Grimm Bros “Snow White” Fairy Tale Art Poster with title written in German, English, French and Swedish.  
Watercolor Painting (1)  
Watercolor Painting (2)  
4 Ballroom Dance Lessons  
$ Gift Certificate Macaroni Grill  
Sunset Cruise on the Island  
 GSWaterford China ( 1 pc)
 Small Stained Glass Angel
 One Piece Religious Art
 Wire Sculpture of Cowboy playing Guitar
 
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Video

Video

Update on where we are now

Keep this moving around. Eventually it’s going to fall on the right ears.

Video

Thank You to Everyone!!

Here is my latest video. I promise this one is a lot shorter than the last one.

My Plea for help!!

A Plea for Help!!

This is a link to the video that I uploaded to Youtube the other day.  I will continue to load more videos updating everyone on what is happening.  I promise to keep them shorter from here on!

My thanks to everyone!!

Paul

What now?

For the first time though this journey I really feel helpless. I will admit, this is a particularly tough week. Lisa and I have been spending each evening packing. This is the week that we surrender our home back to the bank.

 We were fortunate to find a home here in Portland that we can rent (substantially cheaper than the mortgage on this place). It’s not ideal, but we didn’t expect it to be. It will work though. Most importantly, if something happens to me, and I can no longer work, Lisa can afford (just barely) to keep the place.

My ability to continue working in the future is really part of what is bothering me. I’ve posted about this in the past, but realized after it was too late, that I posted this blog on the wrong page. So let me bring everyone up to speed. If you’ve heard this before, I apologize for repeating it.

On June 4th I went in for my normal chemo treatment. I had just had a PET Scan a few days prior, so I knew I was meeting with the doctor to review those results. The news was not what we wanted to hear. In fact, what he told us was that the current treatments were not working. During the previous 6 weeks that I was on this new regimen my cancer had spread as if I were receiving no treatment at all.

My first reaction was to say, “OK, then what are we going to try this time?” He just shook his head and said, there are no other treatments for Pancreatic cancer. Apparently, with this it’s just 2 strikes and you’re out. He went on to tell Lisa and I that my only hope was to find a clinical study that might include a drug that could help me.

By this time Lisa was sobbing openly. I was still numb and dumbfounded that anyone could tell me that there are no other options. Lisa asked that question that we really didn’t want to know: Without finding a successful solution, how much longer do I have to live? Dr. Mahmood hedged on this quite a bit. Obviously he can’t look into a crystal ball anymore than I can. “Typically” he said, “with this type of cancer, patients will last 8 – 10 months without treatment.” He did go on to reiterate that I am not the typical patient. I am MUCH younger (30 years) and healthier than the typical patient. It is clear though that the prognosis is bleak.

We talked about options for treatments. MD Anderson has never accepted my insurance in the past. The just don’t see eye to eye with the VA. So I asked about the possibility of going back to The Cancer Treatments and Research Center (CTRC) in San Antonio. This is the Cancer Center that did my original surgery. I also started my chemo here. Being a research facility, and one of the best in Texas, I thought we’d have a decent chance here.

The Doctor’s office set up an appointment for us to meet with Dr. Lu. I had met Dr. Lu in the past and really liked him, so I really encouraged. I felt like this was a new beginning for us.

The day came for us to go to CTRC. When we got there I couldn’t help but feel as if Dr. Lu was completely caught off guard by us. We talked for quite a while and he was brought up to speed on my history since I had last been at CTRC. At that point he excused himself saying he was going to go to the research office to see what studies I might be eligible for.

I have no idea how long he was gone. It felt like hours to me. I kept falling asleep while we waited for him. Finally he came back in with two phase one studies in his hand. Now I am exaggerating when I say this, but to me, it felt like he walked in threw the paperwork down on the table and said here you go, here are two for you to choose from. That’s not the way I want this to work! I want to see some enthusiasm! I want him to walk in and say, I think this is the answer for you! Instead I get, “maybe you could try this one…”

I have read through paperwork on clinical studies before. I am not a novice at this anymore. I read through the study her recommended. It was for a drug typically used for patients with prostate cancer. The study was pretty much open to anyone with advanced cancer that had exhausted all FDA approved studies. In other words, as I read it, your chances of survival are minimal anyway so let’s see what happens when we give you this drug!

Lisa and I walked away from CTRC feeling completely let down. I had so much hope that the answer was going to be there. They had all been so wonderful in the past. In retrospect, I think they were just in over their heads.

In my mind, that really just leaves one more option. I have to get into MD Anderson. They are not only the best Cancer center in Texas, but one of (if not THE) best in the world. Now, as I’ve said in the past, they are not happy about anyone from the VA coming to their facility. The VA, you see, has a terrible reputation about paying it’s bills. However, when we called and spoke to the business office they were very receptive.

Somewhere in the middle of all this, I received a call from the VA. It was a very nice lady in the Harlingen (Texas) office. Her office is the one that approves the vouchers for Veterans to receive care outside of the VA system. She informed me that while the VA had no problem with me going to MD Anderson, and they were more than willing to pay for the treatments, it appeared that I had already exhausted all conventional treatments, and the VA does not pay for non-FDA approved treatments.

The VA finally agreed to send me to MD Anderson for a couple of visits so that they could come up with a treatment plan. Once they came up with that plan then the VA would evaluate their ability to pay for it. MD Anderson said, “We’re not going to waste everyone’s time with that!”

All this time, Lisa is wrestling with MD Anderson and I’m wrestling with the VA. The VA would say, we told them they would pay, what more do they want? MD Anderson would say, we don’t like the way the voucher is worded, we want a few more things put into it. In the mean time we’re stuck in the middle. I would say to the VA, if you would call MD Anderson, you could have this worked out in a couple of minutes. The VA says they are physically unable to make those kinds of outbound calls. So we say to MD Anderson, here’s the lady’s direct line, if you’ll call her we can get this worked out in no time! Reluctantly (very reluctantly) she finally agreed.

In the mean time MD Anderson suggested that we apply for financial assistance. I assumed that this was going to come from the drug companies. After all, aren’t they the ones that really want to see me get into their trials. If they can cure me, they could make gazillions of dollars.

We had to scrounge up paperwork from everywhere. Fortunately this was a couple of days before we started packing the house, so I was able to lay my hands on it. We got every submitted that MD Anderson asked for. Of course, two days later they called back and asked for even more stuff. Again, we were able to get it to them within an hour or two of their request.

While we were fumbling around getting our paperwork together for the financial aid package, apparently MD Anderson and the VA spoke to each other. They worked everything out, or so we were told, and we had a green light. As it turns out, MD Anderson is still unhappy. Although the VA did include all of the language that MD Anderson wanted, it was put in the addendum section of the voucher instead of the main body and that’s just not good enough!

Yesterday we received word that our financial aid package was denied. I thought that was really odd, because we really don’t make any money to speak of. It turns out that the financial aid was through a federal program (not the pharmaceuticals) and because I’m already insured by a federal program (The VA) this program won’t touch me.

So there you are. That’s my story. I’m 45 years old. 10 year Veteran of the Navy.  I have a wonderful family. Two jobs that I adore. I am a taxpaying, productive member of society and I have somewhere around a year to live without treatment. Everyone is sympathetic to my plight, but unwilling to help. The VA is a typical bureaucracy; they people I talk to want to help, but can’t. Our point of contact at MD Anderson seems completely put out by us and all of our phone calls.

I don’t know where to turn now. I suppose the thing to do is start looking for research studies in other parts of the country. The real problem with that is that even if I do get accepted, I know that it’s a gamble. I would so much rather be close to my family through this then say Chicago.

At this point I am ready to go to the media. Is this the way that we treat our Veterans? Is this what healthcare is going to look like in a few more years. Surely this is the type of story that they carry. Perhaps if enough attention is brought to this, someone will relent and agree to cover my treatments.

If you’ve read this far, I really appreciate it. I know this was long, but it’s been building for a long time. Perhaps you have some advice. Perhaps you want to share it with the media? I’m going to.

I don’t know what my future holds; no one does.  I do know this…  It’s been since May 21st since I last had any treatment for my cancer.  It’s not getting any better.  We have to do something before I absolutely reach the point of no return! 

 

A New Beginning!

This is the day.  In about an hour Lisa and I are heading to San Antonio.  There we are going to meet with a Gastro Oncologist, Dr. Lu, at the Cancer Therapy and Research Center.  We’re going to talk about treatments that might be available for me.

It’s been such a long week and a half.  It’s hard to believe that it was just last Monday that my local oncologist told me that there was nothing else he could do.  It’s not been without roadblocks either.  Just this Monday I was told that the VA won’t pay for any experimental drugs.  In other words, if it’s not FDA approved and being used for it’s intended purpose, they won’t pay.

Fortunately the doctors at CTRC also have privileged at Audie Murphy VA Hospital in San Antonio.  For those of you not familiar, Audie Murphy is a gigantic VA hospital in San Antonio.  Since the CTRC Doctors are so much closer to the people actually writing the checks, we’re hoping that will make a difference when it comes to clinical trials.

We had been holding out hope that Lisa’s insurance would kick in a little early and I would just be able to use it.  After a little checking from Lisa this week, we found out that isn’t going to be an option.  Her insurance says that they will not cover me, because of pre-existing condition until after a one year waiting period.

So there you are.  We have very few options at the moment.  The truth is though, until we meet with a research oncologist (i.e. Dr. Lu), we don’t even know if there is a treatment available for me.  So we’re going to have to take this one step at a time.  That’s why today is a new beginning.  

After we find out what my treatment options are, then we’re going to worry about how it’s getting paid.  Worst comes to worst, I’ve already got my press release ready.  I have no problem going to the media to tell them that the VA is willing to let a healthy, 45 year old father of 2 and Desert Storm Veteran die, because they won’t pay for my treatment.

Honestly I do hope it doesn’t come to that.  I would much rather just sail right through all this.  Give me a treatment that works.  Make me better.  Let me move on with my life.  I’m really getting bored with this whole cancer thing!!

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